Tuesday, August 31, 2010


One week til Bai's appointment with Dr. Walker. I never thought I'd be excited to say, I'm looking forward to her next surgery date, but this kind of surgery, where she can return to a normal life, I am! :)

Here's a video of Bai playing on one of our phones from last week.

Monday, August 23, 2010

One Month...


One month ago TODAY, we were sitting in the PICU while Bai was off and on sleeping and in some pain. We had no answers, weren't sure what was going on, and things still hadn't sunk in.

We're glad that this is where we're at today, and very VERY grateful.

This pic was taken last nite, as she decided she needed to eat a poptart at 10:30 pm in my bedroom...this was the sweet face I got. Love this kid. She cracks us up everyday. Such a cute kid.
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Wednesday, August 18, 2010

Speed it up?

Can someone speed up September 7th Please?

I just want to get all this mess over with already?

Friday, August 13, 2010

Weekly Update

There isn't anything going on right now, but I thought I'd give an update anyways...

-We absolutely cannot wait til September 7th for the appointment with the Neurosurgeon to get the next surgery date made... It feels like its forever away.

-The stitches are dissolving and its really weird to watch. Its itching her as their disappearing, as well as the hair growing back around it, so that's not been fun for her.

-Bailey had a bit of a nite terror last nite (i've been having them since we got home from the hospital it seems), and it took a loooooong time to get her out of it. I hope it doesn't happen again tonite. I hope its not related to any of the trauma she's been thru. She's been really verbal about everything lately, and has been remembering people that came and visited her in the hospital. Kinda cute.

-We got two more bills in the mail today. We've yet to get anything from insurance saying they've denied or processed any claim...so we're anxious to get that.

Dave has had this past week off of work, from saved up PTO. We've celebrated our Anniversary (5 yrs on Monday), and his birthday on Wednesday. So, I've gotten to sleep in, do errands during the day, and get a few more things done around the house as well. :)

If you still read the blog, Thanks! Sorry I don't have anything exciting to put on here right now :)

Wednesday, August 4, 2010

Wednesday Update.

There's no real "new" update to say right now.

Bailey is doing really well. She sometimes complains of a headache, but doesn't want to do anything about it. She just wants to be Bailey, which is great! Her sutures are dissolving, and it is soooo crazy to watch that happen. The incision is starting to itch her, so I got some advice from a friend, of what to do for that, so Bailey won't scratch at it. We found blood on her hand yesterday, not knowing where it came from, so we're guessing it was that...

We went to Boondocks on Saturday to celebrate Bailey being home, and the tumor being benign and all of that. It poured on us almost the whole time, but it was still interestingly fun, and Bai loved it. We'll have to go another day when its not going to rain, I guess. I didn't take my camera (weird, I know) but I do have a picture from my phone, I'll put up. :)

We still have to wait until September 7th, to meet with Dr. Walker, the neurosurgeon to find out when the next one will be, and so I'm still being SUPER protective of her, but I find myself letting go just a little bit. She seems to be adjusting a little to it, but still mad about the bike riding. :)

We received an anonymous donation on Sunday...which made us actually think about just how much are bills are going to be. So we looked up how much are deductible is, and what percentages are insurance covers... Our house dreams and Disneyland are out for the next year (or two). That donation we received was a welcome surprise, its going straight towards medical bills. When we get a bill...so I guess its going into savings for now :) Thank you to whoever it was!!! You're great!